Tag Archives: tracheal stenosis

Hello Doctor!

Today was my six week follow up appointment from my last dilation. He seemed very happy to see that the shelf has not started forming again. Everything is looking nice and healthy! I asked him if he could tell a difference when he does the dilation as to whether it is getting better or not. He said he could but what happens a lot of times is people with tracheal stenosis know how good it feels after having the dilation (literally, a breath of fresh air!) and they tend to think their stenosis is getting worse (or back to the original state) sooner than it actually is. We become “greedy” as he said. Now, he didn’t mean that in a mean way, just stating a fact. I believe it. I know how great I feel after my dilation that as soon as the breathing gets worse I’m ready to get stretched out again. However, I always wait until my Peak Flow reads 150 or worse before actually doing the dilation. That way, I’m not getting them too soon and causing more damage in the long run.

He said he’s trying to get me to where it’s manageable and I can be one of his patients that’s currently 5-8 years from their last dilation. That would be AWESOME! If I could breathe this well from now on, I’d be happy. Of course, I always have the option of tracheotomy or a resection surgery but those aren’t even on my list right now. I’ll keep managing it with the dilations (sometimes with laser and balloon, sometimes just balloon).

When feeling my throat he asked if I’d ever had problems with my thyroid. I told him years ago (15+) I had hypothyroidism but it’s been fine for the past several years. Something in the way my thyroid felt made him a little uneasy, which in turn made me uneasy! Guess, we’ll see how it goes from here. Next appointment is in 6 months! By then, I’ll have run my Run Thru the Woods 5 Miler1/2 marathon, Color me Rad 5K, Hot Chocolate 5K, and Run for your Life 5K! That’s more races in 6 months than I’ve done in a year!

I Love the Smell of Oxygen

Oxygen doesn’t smell? Of course it does, and it’s incredibly sweet! On Monday, 10/8/12, I went in for my 4th dilation and I’m hoping my last one (as I hope every time). Battling with tracheal stenosis is becoming incredibly tiring and I just want it to go away!

The morning started at 4:00 since we had to leave at 4:30. Traffic was a bit busier than I thought but we got to the hospital with about 20 minutes spare. Unfortunately, I was in such a state that I couldn’t find the right place to go to. I knew it was floor 7, but apparently I was using the wrong elevator. Thankfully, a nice nurse at the information center pushed us in the right direction. As soon as I got to the check in they whisked me back to the room.

I got all stripped down and dolled up in my hospital attire. I had a new nurse this time, Carol, but she was very sweet and efficient. The worst part about the beginning is putting the IV in. Why do those have to hurt so much? Once all the fuss and bother was done, it was just a matter of waiting for the doctors to come by, then wait again to be wheeled back.

Mike always stays with me until we hit the mistletoe! They have a spot where the mistletoe hangs so your sweetie can give you a kiss before they go to the waiting room. They pushed me into the operating room, which I swear was a freezer! I helped them move me on to the operating table and looked around at everything. Talk about an increase in your blood pressure! They don’t take long putting you out however once you’re in there.

After what felt like a minute asleep I heard my nurse talking to me. I don’t recall what she said exactly, just that she was going to take the tube out since I was breathing. Then, as they were wheeling me to the recovery room I heard her talking to the other nurse (another new one) saying “Oh, no, she’s a good patient. She always is. She’s training for a marathon!” Of course, I was so groggy I couldn’t really respond but in my mind I clearly said “How did you know that?” I’m pretty sure I didn’t tell her, unless she was questioning me after I was under! Plus, I’m training for a 1/2 not a full! Pfftt…not important. Ok, back to the story.

In recovery there was a guy, another patient, who would NOT shut up. His nurse kept telling him that he needed to be on voice rest. Voice rest = SHUT UP. He was driving me bonkers! Once I was pretty much awake and could take that first deep breath, I was ecstatic! My throat was raw, like I had been yelling and breathing in sandpaper all night. After a few minutes of making sure I could keep a normal conversation (didn’t go all loopy!) they took me back to my room and got Mike.

The doctors don’t ever come back to talk to the patient after surgery since most of the time the patient is still a bit out of it won’t remember the conversation, but he did talk to Mike. They didn’t need to use the laser, yay!! That’s progress, I think. Mike said Dr. D was able to open my throat up a lot bigger than it was before the surgery. I could definitely feel a difference in my breathing. Night and day!

We stopped at Cracker Barrel on our way home and I ate the blackberry pancakes. Eating was a little difficult and has been for the past couple of days, but I think it’ll get better. Once I got home, I slept and slept and slept! My sweet Ellie girl kept me company! I love my fur babies!

Today is three days out from surgery and I’m still a little groggy but I feel like I could run a 9 minute mile! Of course, I’m restricted from exercise and lifting until the Doc releases me. That’s driving me a little nuts since I feel like I should be doing some form of exercise. However, a week’s rest will do my body good.

I had to give away my spot in the 10 for Texas race on Saturday, which I’m a bit bummed about. Mike is still running it though, so I’ll be there to support my Love and my running group! Plus, next Saturday I have the 5K Foam Fest with Amy! I’m really stoked about that one…and a little scared, truth be told!

I hope you’re all enjoying your Fall (even though it’s not really all that much cooler!) and living up every day to it’s fullest potential!

Hello My Pretties!!

Whoops…it’s been quite a while since I’ve posted. Ok, let’s see if I can catch everyone up to speed!

Monday 8/23
WOD Modified due to breathing
5 Rounds:
5 Front Squats (45#)
20 Weighted Step Ups (15# Kettlebell in each hand)

Tuesday 8/24
Strength:
Clean and Jerk
3(65#)x 3(75#) x 3(85#)

WOD:
100 Push Ups
200 Squats
OMG…are you kidding me?! I was sore for days afterward! The others had to run 200 meters every time they stopped/rested. I didn’t have to.

Wednesday 8/25
Skill:
Snatch

WOD:
3, 6, 9, 12, 15, 18, 21, etc
Push Press (55#)
Pull Ups (Green band)
Finished round 15 and 10 push press into the next round.
The push presses were tough. My arms were quite sore from the push ups the day before. My arms were very achy over the weekend from both WODs.

Monday 8/29
Skill:
Kipping Pull Ups

WOD:
5 Rounds
3 Cleans (65#)
20 Burpees (Modified to 10)
Finished in 12:13
I could definitely do more weight on the cleans. One of my problems is estimating the right weight for me.

Tuesday 8/30
Strength:
Front Squats
5(45#)x 5(65#)x 5(75#)x 5(85#)x 5(95#)

WOD:
Tabatas
Squats (10)
Push Ups (6)
Back Extensions (7)
Abmat Sit Ups (9)
Whew…those back extensions were vicious! Glad I did those before the sit ups though. I have a love/hate relationship with Tabatas. They relatively short but it really zaps you. I fell asleep on the way home! hahaha

 

Tomorrow is my 3rd dilation. I can’t wait to be able to breathe again! Last time they were able to increase my trachea by 200%. I hope they can do the same this time. If you have no clue what I’m talking about, you can read about it here. The nerves are starting to kick in and I have a feeling I may not get much sleep tonight. I have to be at the hospital at 7:30 tomorrow morning. Surgery is at 9 and I hope to be home by 12 to get some more sleep!

Muggy Run

Skill:
Muscle Ups

WOD:
4 Rounds
200 Meter Weighted Run (15#)
15 Kettlebell Swings (each arm 15#)
50 Mountain Climbers

Finished in 19:47

Our warm up started with a 400 meter run followed by 2 rounds of sit ups, push ups and squats. I was the last one coming in and was having a really tough time breathing. We had rain most of the day but the sun had come out about an hour before time for our workout, which created a very muggy atmosphere. There was an older gentleman who came back out and finished the run with me. Which was very kind. When we got inside everyone else was pretty much done with their warm ups while I was just starting sit ups. However, my emotions started running high and I was on the verge of crying. I was able to suck it up and hold it together, but I didn’t get the rest of the warm up in. I am so frustrated with not being able to breathe. My workouts suffer, I get highly anxious about what we’re going to do, I no longer look forward to the WODs because I know I won’t be able to compete with my previous times and…quite frankly, it’s embarrassing and humiliating. There were a lot of people there I hadn’t worked out with before who kept trying to cheer me on during the WOD (which I appreciated) but I know they have no idea what the hell’s wrong with me. Ok, enough of that…I go back to the doctor on August 23rd and will more than likely have my dilation a month from then, so I only have to deal with this for a couple more months. Once my throat gets stretched back out, I’ll be back in the game baby!

My shirt kept coming up during the mountain climbers, so I’d like to apologize now for any unnecessary flashing the others may have experienced! The kettlebell swings were easy. I should have used 25, but Shane told the girls to use 15 so I thought it may be harder than it was. Live and learn!

I decided to try out a new theme…what do you think? Too loud?

Monday, Monday…Can’t Trust that Day

Today starts my months of going 3 days a week to CrossFit instead of 2. I was wanting to wait until after my 1/2 marathon. Last week I only worked out once because my feet were still quite sore…and I was being somewhat lazy!

We started with Strength of Press Jerks where I got up to 60#s. I was having a tough time with the form, but it was also my first time to do it so it’ll get better with more practice. The WOD was an AMRAP (as many rounds as possible) in a 15 minute time frame of 9 Deadlifts (85#), 12 Push Ups, and 15 Box Jumps (short box). It doesn’t look too bad, right? Uh uh…it was tough. I finished 4 full rounds and finished the push ups on round 5. Breathing was tough. I have no doubt that my TS is coming back full force. Now, to be completely honest, I haven’t been eating as faithfully in the Paleo arena, so maybe my inflammation is roaring. Only one way to find out!

I’m not sure what to do about my breathing. It’s one thing when your illness/disability if visible, but when it’s not then most people don’t understand why you can’t do as good as the rest of the people. Like today for instance, if I heard correctly some of the other people in the gym got at least 7 rounds or more. I had 4 and 2/3rds. In the process I’m sounding like an asthmatic; However, I can’t take an inhaler to help with my problem. I guess I’m going to need to talk to Shane to explain what’s going on. I don’t want him thinking that I’m dragging ass because I’m lazy. On the other hand, I need to try to push through it a little harder too. I start thinking about how I can’t breathe and panic a bit. If I could try to just concentrate on the workout, maybe I’d do better. As it stands now, I get incredibly embarrassed. I try not to let it get to me, but I can’t help it. Just suck it up, Cupcake!!

On the positive side, my box jumps are getting better I think! For someone who was scared to even try one and now I’m able to do 4 rounds of 15 without too much fear, it’s a marked improvement! My push ups were a bit rough. I did 3 rounds of competition style push ups, but then went to short push ups (not going all the way to the ground). I probably should have done all of them competition style, but I was also wanting to get a decent amount of rounds. The deadlifts were pretty good, except I felt my back wanting to bend as I was getting tired. I had to stop and reposition a couple of times.

Let’s hope tomorrow is a better workout!